I really wish my healing team could talk to each other. I have a team of 6 including neurologist, family doctor, sports injury doctor, RMT, an OT lady and another lady who will be working with me on vision. Yes I can see fine it has to do with the way my brain processes sight since the last brain injury.
Here is the thing though everyone is focused on my brain which is great but when you just focus on that you tend to forget about everything else going on and don't take that stuff into account with the symptoms.
I have Complex Fibromyalgia this means I have almost all of the symptoms from the symptoms list they use to diagnose fibro. What this translates to is, IT SUCKS!
On top of that I have another autoimmune disorder which attacks areas of my body where cartilage has been injured. What this means is when I hurt a joint IE ankle, my body acts like a termite and "eats" away the cartilage.When I told I had this at 17, I was told I would be in a wheel chair by 30, here I am 34 and still able to walk and hike and move! I am so thankful for that.
Add on to those two wonderful things I have what one doctor called a defused shoulder, another doctor called "nothing I can do about it", and one who wants the "nothing I can do about it doctor" to do exploratory surgery to fix it. My should isn't in the socket properly. I can't go back into the socket. MRIs (6 in 5 years) can't see anything because there is too much swelling.
And if that isn't all, we now know why my back hurts like it does and all it took to find out that was a car accident that caused 3 degree whiplash and an MRI to my spine. I have spinal degenerative disease. Which was exacerbated by the accident. What this means is the cushion (discs) between your vertebrae is breaking down. These discs help you with everyday movement like bending and twisting. This is normal for older people, it is advanced at my age. This is a problem. The solution for now until enough of them are gone that they can go in and fill them with something similar to spray foam is yoga.
Now I am frustrated because the neurologist, says not to sleep during the day anymore but I don't sleep much at night because of the pain and well my brain doesn't go into what is called deep sleep, never has.
Pretty much everything added together equals a really tired, always in pain person, who is being told not to sleep during the day.
Well after yesterdays travels and working until 10:30pm on the business it causes a flare day which means I said screw that and listened to my body.
I am frustrated to say the least. They need to figure out how to talk to each other. I try and remember everything at every appointment but with appointments every week, I forget things.
Showing posts with label Post Traumatic Brain Injury Syndrome. Show all posts
Showing posts with label Post Traumatic Brain Injury Syndrome. Show all posts
Friday, September 20, 2019
Wednesday, June 26, 2019
Brain Doctor Take 1
Waiting since my first brain injury to see a doctor, ANY doctor about the injury was horrible, no one would take me on. Well then I second and third brain injury and finally was able to get into the brain injury clinic in London.
This is special clinic and very hard to get into.
The whole experience was amazing from the moment I got there.
I park the car, a man with a little dog parks next to me, he has had a stroke and now takes his dog EVERYWHERE he goes. I get to pet and love the little thing up. I walk into the wrong doors, and look completely lost. They redirect me to where I am actually supposed to be. I am early which is fine I have my crossword book.
I get registered and take a seat with my book. A nurse comes out and asks if I would like to moved to a darker quieter room until the doctor is ready for me. WOW that is a first someone who takes into consideration what a loud bright room does to me. She takes me to a room and turns the lights down, she asks me a million questions and I start to cry to because I don't want her to think I am crazy, or making it up or all the other nasty things Sarnia Hospital seems to think every time I go in and accuse me of just wanting pain meds, which I don't I can't even take pain meds because of the reaction to them. As I am crying and telling her something she says no no no that's normal it was actually my next question on the sheet, see look. OMG!!!! She was amazing and once the questions are finished she offers me a blanket and says if I need anything at all just peek my head out and she will come right away.
I sit for what feels like forever! It was about 30mins because the clock in there is fast lol. A student doctor comes in and asks me a million more questions, I answer as best I can and am crying again. I am not a crier but this is my last hope. No one at the Sarnia Hospital believes me, Dr.Keith my sports doctor is doing everything humanly possible to support and help me through all this and Dr.Campbell my personal doctor has been trying every neurologist across Ontario for 2 years to find someone who will take me on. This here, this apt is my last hope to not feel like I am crazy!
The doctor comes in about 20 mins later and she is AMAZING! She gets it! All of it! I explain that I don't feel pain normal because of the high dose of pain blockers I am on. She said no, you should be feeling no pain at all with pain blockers you are, but what is it at most of the time. We go over everything. She tries to touch my head but it hurts so bad to the touch.
I see it in her eyes and hear it in voice, I am not sure what it is yet but it scares me. She says we need to get this extreme pain under control before we can do anything else. This is the first time someone has called it extreme pain! This is the first time someone gets it! I ask her a few times about the other stuff going on because of the brain injury and she just keeps saying we have to get the pain under control first. That scares me.
Turns out the SUV door slamming on my head damaged the nerve at the back of the head/top of the spine area. This nerve controls the entire left side of the brain. This is my head feels like it does! OMG answers! She says its just like with your foot. Great well I know what has happened with my left foot, I am stuck like that rest of life according to doctors.
She says she wants to put on 100MG of progablin. Its another pain blocker, they want me up to 600MG before my next apt in Sept. If they can get this pain down enough to inject the nerve with freezing. The same freezing they use at the dentist. This has a change of resetting the nerve. So if it works then I wont be in extreme pain anymore, if it doesn't work, at least I will have some relief for a few hours. If it doesn't work I will be stuck with this pain for the rest of my life.
So now I take 250MG of pain blockers in the morning and 100MG at night for a week and each week I go up 100MG at bedtime until I am at 600MG.
Do I want to be on meds the rest of my life no! But I surely want to function, I want to live as normal of a life as a person with post traumatic brain injury syndrome can life.
Anyone who knows me, knows I don't cry, at least not in front of anyone its an alone activity. Yesterday for the first time in my life I broke down in a doctors office. I broke down because the pain in unbearable day to day. I broke down because this was my last chance at help. I broke down because until now no one understood. No one got it!
Yesterday wouldn't have been possible if I didn't keep asking for help. I may be like this rest of my life, I may be in pain like this the rest of my life. But I know I am not crazy like the hospital made me feel.
When your in pain like this everyday you start to wonder if it is just in your head, yes, yes it is in my head literately a damaged nerve in my head!!!
This is special clinic and very hard to get into.
The whole experience was amazing from the moment I got there.
I park the car, a man with a little dog parks next to me, he has had a stroke and now takes his dog EVERYWHERE he goes. I get to pet and love the little thing up. I walk into the wrong doors, and look completely lost. They redirect me to where I am actually supposed to be. I am early which is fine I have my crossword book.
I get registered and take a seat with my book. A nurse comes out and asks if I would like to moved to a darker quieter room until the doctor is ready for me. WOW that is a first someone who takes into consideration what a loud bright room does to me. She takes me to a room and turns the lights down, she asks me a million questions and I start to cry to because I don't want her to think I am crazy, or making it up or all the other nasty things Sarnia Hospital seems to think every time I go in and accuse me of just wanting pain meds, which I don't I can't even take pain meds because of the reaction to them. As I am crying and telling her something she says no no no that's normal it was actually my next question on the sheet, see look. OMG!!!! She was amazing and once the questions are finished she offers me a blanket and says if I need anything at all just peek my head out and she will come right away.
I sit for what feels like forever! It was about 30mins because the clock in there is fast lol. A student doctor comes in and asks me a million more questions, I answer as best I can and am crying again. I am not a crier but this is my last hope. No one at the Sarnia Hospital believes me, Dr.Keith my sports doctor is doing everything humanly possible to support and help me through all this and Dr.Campbell my personal doctor has been trying every neurologist across Ontario for 2 years to find someone who will take me on. This here, this apt is my last hope to not feel like I am crazy!
The doctor comes in about 20 mins later and she is AMAZING! She gets it! All of it! I explain that I don't feel pain normal because of the high dose of pain blockers I am on. She said no, you should be feeling no pain at all with pain blockers you are, but what is it at most of the time. We go over everything. She tries to touch my head but it hurts so bad to the touch.
I see it in her eyes and hear it in voice, I am not sure what it is yet but it scares me. She says we need to get this extreme pain under control before we can do anything else. This is the first time someone has called it extreme pain! This is the first time someone gets it! I ask her a few times about the other stuff going on because of the brain injury and she just keeps saying we have to get the pain under control first. That scares me.
Turns out the SUV door slamming on my head damaged the nerve at the back of the head/top of the spine area. This nerve controls the entire left side of the brain. This is my head feels like it does! OMG answers! She says its just like with your foot. Great well I know what has happened with my left foot, I am stuck like that rest of life according to doctors.
She says she wants to put on 100MG of progablin. Its another pain blocker, they want me up to 600MG before my next apt in Sept. If they can get this pain down enough to inject the nerve with freezing. The same freezing they use at the dentist. This has a change of resetting the nerve. So if it works then I wont be in extreme pain anymore, if it doesn't work, at least I will have some relief for a few hours. If it doesn't work I will be stuck with this pain for the rest of my life.
So now I take 250MG of pain blockers in the morning and 100MG at night for a week and each week I go up 100MG at bedtime until I am at 600MG.
Do I want to be on meds the rest of my life no! But I surely want to function, I want to live as normal of a life as a person with post traumatic brain injury syndrome can life.
Anyone who knows me, knows I don't cry, at least not in front of anyone its an alone activity. Yesterday for the first time in my life I broke down in a doctors office. I broke down because the pain in unbearable day to day. I broke down because this was my last chance at help. I broke down because until now no one understood. No one got it!
Yesterday wouldn't have been possible if I didn't keep asking for help. I may be like this rest of my life, I may be in pain like this the rest of my life. But I know I am not crazy like the hospital made me feel.
When your in pain like this everyday you start to wonder if it is just in your head, yes, yes it is in my head literately a damaged nerve in my head!!!
Monday, November 19, 2018
If it wasn't for bad luck!
As the doctor at the hospital so kindly told me, "if it wasn't for bad luck, you wouldn't have any"
A few weeks ago the hatch let go on the back of my SUV and smacked me square in the side of my head (the same side the I feel on the concrete floor and gave myself a brain injury almost 2 years ago). I of course wait until the next hoping the I would feel better, nope that just not how things go for me.
The hospital was fun I get there around 5pm. My head killing me, can barely stand or walk from the pain and dizziness. It takes 45 mins to get seen by triage, who kept asking me questions I didn't understand and then getting mad at me. After that they park me in a wheel chair in the waiting area. Where it is bright, loud and I want to die. I am in and out of sleep. Wanting to go home. 5 hours later I am seen by the doctor who sends me for a cat scan. They see no noticeable bleeds or fractures. He tells me its a minor brain injury, take Tylenol and go to bed. I spent 6 hours in unbearable pain for you to tell me that?
Thank god I remember vaguely what to do from the last one. Very limited screen time, sleep when you need to, etc, etc.
I of course call my sports injury doctor and he gets me in right away. We go over everything he does a few tests on me to see where I am at. He is mad once again Sarnia hospital has let me down. He says its a serious injury and major concussion. He goes over everything I need to do and I see him again in a week. I call my family doctor....He is on vacation. I need to get into him ASAP so I can go to London to see the specialist. I finally get a hold of him and make an apt. It is for almost a month after the injury.
I wish you could see the brain injury on the outside. I wish people understood instead of just brushing it off. My family when I told them just said okay, they have no clue. My sister asked me to bake her a cake. Which I did but forgot to decorate it until the afternoon she needed it.
Things are different this time. I don't feel drunk which is nice, but the head pain and head aches are 100X's worse. I don't sleep as much as I did the first time even to the point where I can't sleep at times. I can't taste, this is hard to explain lol I can taste like thats sweet, thats sour etc but I can not taste things like the difference between one sour thing and the next. Everything tastes funny. I have zero appetite to the point I can go days without eating and not notice. My memory sucks. Looking at screens sucks. Trying to get client orders done sucks. I haven't cook since it happened because by the time dinner time comes I am spent and in the mornings I forget to put the stuff in the crock pot. Reading text on a screen is very hard and near impossible is there is a lot in one area, proof reading my blog posts is a nightmare.
Blaine is amazing like always. We had to leave gymnastics early the one day because the lights and everything going on was too much and he said it was okay. If I need to lay down for a few mins he says "its okay mom, rest your head" How is that a 4 year is more understanding and compassionate than grown people?
My to do list is 6 miles long and keeps growing. I do what I can to get through it but I need to let my brain heal, because I know when it does there will be another "new me" at the end. The last one changed me big time and this one is going to change me, again. Lol maybe I will be super hero this time around.
Time heals all including the brain. I just need to remember to slow down and let it do what it needs to.
Its been 3 weeks and some things have improved, but lots have remained the same. Like my ability to read at my normal speed and level, counting without thinking lol. Things we all take for granted and I am relearning how to do.
A few weeks ago the hatch let go on the back of my SUV and smacked me square in the side of my head (the same side the I feel on the concrete floor and gave myself a brain injury almost 2 years ago). I of course wait until the next hoping the I would feel better, nope that just not how things go for me.
The hospital was fun I get there around 5pm. My head killing me, can barely stand or walk from the pain and dizziness. It takes 45 mins to get seen by triage, who kept asking me questions I didn't understand and then getting mad at me. After that they park me in a wheel chair in the waiting area. Where it is bright, loud and I want to die. I am in and out of sleep. Wanting to go home. 5 hours later I am seen by the doctor who sends me for a cat scan. They see no noticeable bleeds or fractures. He tells me its a minor brain injury, take Tylenol and go to bed. I spent 6 hours in unbearable pain for you to tell me that?
Thank god I remember vaguely what to do from the last one. Very limited screen time, sleep when you need to, etc, etc.
I of course call my sports injury doctor and he gets me in right away. We go over everything he does a few tests on me to see where I am at. He is mad once again Sarnia hospital has let me down. He says its a serious injury and major concussion. He goes over everything I need to do and I see him again in a week. I call my family doctor....He is on vacation. I need to get into him ASAP so I can go to London to see the specialist. I finally get a hold of him and make an apt. It is for almost a month after the injury.
I wish you could see the brain injury on the outside. I wish people understood instead of just brushing it off. My family when I told them just said okay, they have no clue. My sister asked me to bake her a cake. Which I did but forgot to decorate it until the afternoon she needed it.
Things are different this time. I don't feel drunk which is nice, but the head pain and head aches are 100X's worse. I don't sleep as much as I did the first time even to the point where I can't sleep at times. I can't taste, this is hard to explain lol I can taste like thats sweet, thats sour etc but I can not taste things like the difference between one sour thing and the next. Everything tastes funny. I have zero appetite to the point I can go days without eating and not notice. My memory sucks. Looking at screens sucks. Trying to get client orders done sucks. I haven't cook since it happened because by the time dinner time comes I am spent and in the mornings I forget to put the stuff in the crock pot. Reading text on a screen is very hard and near impossible is there is a lot in one area, proof reading my blog posts is a nightmare.
Blaine is amazing like always. We had to leave gymnastics early the one day because the lights and everything going on was too much and he said it was okay. If I need to lay down for a few mins he says "its okay mom, rest your head" How is that a 4 year is more understanding and compassionate than grown people?
My to do list is 6 miles long and keeps growing. I do what I can to get through it but I need to let my brain heal, because I know when it does there will be another "new me" at the end. The last one changed me big time and this one is going to change me, again. Lol maybe I will be super hero this time around.
Time heals all including the brain. I just need to remember to slow down and let it do what it needs to.
Its been 3 weeks and some things have improved, but lots have remained the same. Like my ability to read at my normal speed and level, counting without thinking lol. Things we all take for granted and I am relearning how to do.
Sunday, July 9, 2017
Post Traumatic Brain Injury Syndrome
Have you ever been drunk, that horrible
everything spinning, feel sick with every movement, cant see or think
straight?
I have and it wasn't caused by alcohol, it lasted for months. In January of this year I fell, smashed my head on the cement floor, knocked myself out for a couple mins and never thought anything of it. Ya I was sore and had a headache because well I just smacked my head on the floor. I went and laid down. When I woke up about an hour later I felt drunk, my head was killing me, and I couldn't even walk straight. Meh I figured I see my doctor on the upcoming Tuesday I will just talk to him about it then.
Here comes days of me feeling horrible, I can't think, my head hurts, I am dizzy, all I want to do is sleep and am sick. I head into the doctors I tell the nurse why I am there, just a script refill, and I tell her that I fell on the weekend and how I felt. She asked if I went to the emergency room, of course not why would I do that its just a little bonk on the head. She scolded me and I waited for the doctor to come in. Explained to him what happened, he asked if they did a brain scan at the hospital, I told him I didn't go, again with the scolding. He booked me a brain scan and explained what Post Traumatic Brain Injury Syndrome was. That I needed to see a sports injury doctor which I already do for my shoulder so I booked an appointment with him. Here I am thinking that everyone is over reacting. I go see him the next day still feeling the way I am, at this point I am barely leaving the house, I am confused and over whelmed by the smallest things and I can't get my brain to think straight.
Hello my wonderful sports injury doctor who has been there for me over the past 3 years with my shoulder and the other klutz injuries I get. Things are not okay at this point, I am not okay, this is not just a small bump to the head. I can't go into a store without getting lost, confused and breaking down. I feel stupid, I can't remember simple things that I should, day to day activities are beyond exhausting. I am used to the fibro fog, I am used the fribo exhaustion but this is different this is far more extreme. I cant go anywhere alone. Too much noise or commotion I am screwed and it causes so much confusion I don't know what to do. Sports doctor tells me we can't start rehab until the drunk symptoms go away, this takes weeks and its scary. I start rehab its a mix of starting small things, I can't even help a child with simple math at this point. I can't put memories in order still nothing makes sense. Even showering I would forget why I was in there and what I was doing.
Surprise they now tell you sleep is the best thing for concussions!!! its the way your brain heals itself.
Fast forward a few months I am doing better, but not 100% I still can't remember things, I am having trouble with simple words and math. I still can't put memories in order and don't tell me anything because I wont remember a few minutes later, I am getting confused. Sports doctor has me doing crosswords, it helped a lot but still I wasn't right. I was scared I was going to stuck like this. Stuck not being me, or the same ever again. My sports doctor explained it as I just dumped the entire file cabinet and and now my brain is trying to sort through it. At this point my full recovery isn't looking like its going to happen but he says the brain is a unique organ always changing so at the point where I feel like giving up I have a bit of hope.
Fast forward to today! I am 6 months since my fall. I am not 100% and at this point its a low chance I ever will be. I don't remember much of anything when told. My head hurts most of the time because of course me being me I over do it daily. I can't put together memories from the past properly, I get over whelmed and confused still but not as often or as bad. Numbers I still can't do, which sucks because I do all my business book work. I get flashes of memories and feelings and somethings trigger memories when this happens and I can't put it together or make sense of it I tend to get really really upset. I tell the same stories and information over and over again because I don't remember telling it. I don't remember dates or other important information. My business partner puts it in her phone for me because even in my phone I either forget my phone, lose it or forget to set the reminder. My brain still gets tried and can't focus. I do my best to work through it.
A lot of people don't understand a brain injury and they don't understand that I am hurt, I am broken, you just can't see it. I have been lucky I have had an amazing support team in place for the most part. Some days they get frustrated with me but then again I get mad at myself daily for my brain not working. I gave up getting mad and upset when I can't remember and have to look at it like this I don't remember that's okay, I will eventually and if I don't that's okay too, people can get mad at me all they want for forgetting its not going to change it and its their issue not mine. Getting mad and frustrated just makes things worse for me and causes my brain to go into panic mode which is useless.
I have to be careful because I am more likely to be hurt worse by a bump to the head then someone with out a prior injury. I have whats called Post Traumatic Brain Injury Syndrome and not everyone that hits their head gets it, not everyone who gets their head gets a concussion, not everyone who gets a concussion gets post traumatic brain injury syndrome. Its scary and I don't wish it upon anyone.
A few weeks ago I had severe face swelling to the point I couldn't open my eye. The pressure of it caused pressure to my healing brain and sent me into having symptoms just like day one again. I once again failed the light test and the finger test. I was scared once again that I was stuck like that but thankfully after the swelling went again completely so did the drunk feeling.
If you hit your head and it causes you to pass out for any amount of time please get looked at, there is help out there for people who have PTBIS you just have to ask, even if you hate the idea of doing so.
No matter what anyone says allow your brain time to heal and its okay, you are okay and doing the best you can each day. Take a breath when you get confused. Focus on something right in front of you, cover your ears, touch your support person or call your support person, its okay. Its okay to have better days than others and its okay if you are never the same again. Love who you are now. The memories that I can't remember I look at it like this, well if I can't remember then I guess it didn't happen, don't stress yourself into a panic over a memory its not worth it.
You are perfect just the way you are. Live one moment at a time!!!
http://www.braininjurynetwork.org/thesurvivorsviewpoint/posttbisyndrome.html
I have and it wasn't caused by alcohol, it lasted for months. In January of this year I fell, smashed my head on the cement floor, knocked myself out for a couple mins and never thought anything of it. Ya I was sore and had a headache because well I just smacked my head on the floor. I went and laid down. When I woke up about an hour later I felt drunk, my head was killing me, and I couldn't even walk straight. Meh I figured I see my doctor on the upcoming Tuesday I will just talk to him about it then.
Here comes days of me feeling horrible, I can't think, my head hurts, I am dizzy, all I want to do is sleep and am sick. I head into the doctors I tell the nurse why I am there, just a script refill, and I tell her that I fell on the weekend and how I felt. She asked if I went to the emergency room, of course not why would I do that its just a little bonk on the head. She scolded me and I waited for the doctor to come in. Explained to him what happened, he asked if they did a brain scan at the hospital, I told him I didn't go, again with the scolding. He booked me a brain scan and explained what Post Traumatic Brain Injury Syndrome was. That I needed to see a sports injury doctor which I already do for my shoulder so I booked an appointment with him. Here I am thinking that everyone is over reacting. I go see him the next day still feeling the way I am, at this point I am barely leaving the house, I am confused and over whelmed by the smallest things and I can't get my brain to think straight.
Hello my wonderful sports injury doctor who has been there for me over the past 3 years with my shoulder and the other klutz injuries I get. Things are not okay at this point, I am not okay, this is not just a small bump to the head. I can't go into a store without getting lost, confused and breaking down. I feel stupid, I can't remember simple things that I should, day to day activities are beyond exhausting. I am used to the fibro fog, I am used the fribo exhaustion but this is different this is far more extreme. I cant go anywhere alone. Too much noise or commotion I am screwed and it causes so much confusion I don't know what to do. Sports doctor tells me we can't start rehab until the drunk symptoms go away, this takes weeks and its scary. I start rehab its a mix of starting small things, I can't even help a child with simple math at this point. I can't put memories in order still nothing makes sense. Even showering I would forget why I was in there and what I was doing.
Surprise they now tell you sleep is the best thing for concussions!!! its the way your brain heals itself.
Fast forward a few months I am doing better, but not 100% I still can't remember things, I am having trouble with simple words and math. I still can't put memories in order and don't tell me anything because I wont remember a few minutes later, I am getting confused. Sports doctor has me doing crosswords, it helped a lot but still I wasn't right. I was scared I was going to stuck like this. Stuck not being me, or the same ever again. My sports doctor explained it as I just dumped the entire file cabinet and and now my brain is trying to sort through it. At this point my full recovery isn't looking like its going to happen but he says the brain is a unique organ always changing so at the point where I feel like giving up I have a bit of hope.
Fast forward to today! I am 6 months since my fall. I am not 100% and at this point its a low chance I ever will be. I don't remember much of anything when told. My head hurts most of the time because of course me being me I over do it daily. I can't put together memories from the past properly, I get over whelmed and confused still but not as often or as bad. Numbers I still can't do, which sucks because I do all my business book work. I get flashes of memories and feelings and somethings trigger memories when this happens and I can't put it together or make sense of it I tend to get really really upset. I tell the same stories and information over and over again because I don't remember telling it. I don't remember dates or other important information. My business partner puts it in her phone for me because even in my phone I either forget my phone, lose it or forget to set the reminder. My brain still gets tried and can't focus. I do my best to work through it.
A lot of people don't understand a brain injury and they don't understand that I am hurt, I am broken, you just can't see it. I have been lucky I have had an amazing support team in place for the most part. Some days they get frustrated with me but then again I get mad at myself daily for my brain not working. I gave up getting mad and upset when I can't remember and have to look at it like this I don't remember that's okay, I will eventually and if I don't that's okay too, people can get mad at me all they want for forgetting its not going to change it and its their issue not mine. Getting mad and frustrated just makes things worse for me and causes my brain to go into panic mode which is useless.
I have to be careful because I am more likely to be hurt worse by a bump to the head then someone with out a prior injury. I have whats called Post Traumatic Brain Injury Syndrome and not everyone that hits their head gets it, not everyone who gets their head gets a concussion, not everyone who gets a concussion gets post traumatic brain injury syndrome. Its scary and I don't wish it upon anyone.
A few weeks ago I had severe face swelling to the point I couldn't open my eye. The pressure of it caused pressure to my healing brain and sent me into having symptoms just like day one again. I once again failed the light test and the finger test. I was scared once again that I was stuck like that but thankfully after the swelling went again completely so did the drunk feeling.
If you hit your head and it causes you to pass out for any amount of time please get looked at, there is help out there for people who have PTBIS you just have to ask, even if you hate the idea of doing so.
No matter what anyone says allow your brain time to heal and its okay, you are okay and doing the best you can each day. Take a breath when you get confused. Focus on something right in front of you, cover your ears, touch your support person or call your support person, its okay. Its okay to have better days than others and its okay if you are never the same again. Love who you are now. The memories that I can't remember I look at it like this, well if I can't remember then I guess it didn't happen, don't stress yourself into a panic over a memory its not worth it.
You are perfect just the way you are. Live one moment at a time!!!
http://www.braininjurynetwork.org/thesurvivorsviewpoint/posttbisyndrome.html
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